Tuesday, 5 June 2012

Intellectual Disabilities

Intellectual Disability is neither an illness nor a disease. Essentially, the term refers to delayed intellectual growth that is manifested in immature reactions to environmental stimuli and below-average social and academic performance. However, individuals who are described as intellectually disabled vary widely in almost every aspect of human behaviour, personality, and temperament. Students who are intellectually disabled have difficulties with complex academic material; that are markedly slower than their age-mates in reasoning, making judgements, using memory effectively, and any attempts to take into account the incident rate of a relatively common disorder almost invariably fails to take into account some affected individuals. This occurs in the case of intellectual disabilities, where mild conditions prove elusive and are difficult to accurately pinpoint. Many mild cases go unreported, although this is not true in the case of significant intellectual impairments. Different IQ cut-off points are used, different methods of gathering data for prevalence studies are used, different definitions of adaptive behaviour are used, different regions and social classes show different prevalence rates. There are also gender differences within prevalence estimates. Somewhere between 5 and 10 times as many boys than girls are considered to be mildly intellectually disabled. Mild intellectual disability is a particular controversial since children in this category tend to be almost exclusively from poor families often of minority origin. Different age groups also show different prevalence figures. There are many other labels in use for children who are considered intellectually disabled. These include developmentally challenged, developmentally disabled, and developmentally delayed. Labels that include the word “developmental” may contribute to the stereotype and false belief that a person with an intellectual disability will never grow up. An intellectual disability does not stop a person from developing, even if the pace, process and outcome of their development may not be considered as “normal” to some. They are unique human beings, growing and changing every day.

Definition of Intellectual Disability: It is not a disease you can catch from anyone and it is not a type of mental illness like depression. There is no ‘cure’ for intellectual disabilities, however most children can find tools and strategies to help them learn; it just may take more time and effort. Disorders such as Downs Syndrome and Autism Spectrum Disorder are intellectual disabilities.

     The AAMR (American Association on Mental Retardation) definition was adopted in 1959 and uses the term mental retardation. Its definition is "mental retardation refers to substantial limitations in personal functioning. It is characterized by significant sub average intellectual functioning, existing concurrently with related limitations in two or more of the following applicable adaptive skills: communication, self-care, home living, social skills, community use, self-discretion, health and safety, functional academics, leisure, and work."
     There are other definitions that prescribe cut-off points to different IQ levels, or suggest that the developmental period ends at a later or earlier age. Despite the differences between various definitions, most of them share three critical points: sub average intellectual functioning, deficits in adaptive behaviour, and manifestation during the developmental period. Sub average general functioning has differed in the IQ score needed to qualify, today it is an IQ score of below 70. At risk, borderline, or slow learners fall between 70-85.  

(Nichy.org)

     Prevelance: Intellectual disabilities are the most common developmental disability: Approximately 6.5 million people in the U.S. alone have some sort of intellectual disability. More than 545,000 between the ages of six and twelve have some level of intellectual disability and receive special education. 1 in every 10 children who need special education has some form of intellectual disability. Approximately 2% of Canadians have been given a diagnosis of intellectual disability. Of these, about 90% have “mild” disabilities. However, labels like “mild” say nothing about the type or intensity of support an individual might require, just as non-disabled individuals in the community have widely varying needs.
           
        An intellectual disability may be congenital (the individual is born with it) or it may be acquired, through accident or disease. Some people associate intellectual disability with specific causation (such as Autism or Down Syndrome,) but in about 50% of cases, the case in unknown and is often described as a “generalized intellectual disability”. 
     Etiology: Only about half of the cases have a known cause. The most common clinical cause of intellectual disability is Down's Syndrome. The 21st chromosome in these individuals can have disjunction (3 instead of 2), translocation (only part is in triplicate), or mosaicism (faulty distribution of chromosomes in later cell divisions). There is also a fragile X syndrome. Its inheritance pattern is unique. When a male is the carrier, it will be passed only to his daughters. When a female is the carrier, there is a 50% chance of passing it on.Genetic defects include Williams Syndrome (caused by a deleted chromosome 7, characterised by cardiovascular abnormalities, short stature, and developmental delays), Prader-Willi Syndrome (irregularity with chromosome 15, characterised by obesity, small stature, hands, and feet, mild intellectual disability, learning disabilities, and language disorders),and Angleman Syndrome (deletion of chromosome 15, characterised by severe mental retardation, seizures, ataxia (problems with gait and ambulation), microcephaly, particular facial appearance, and a fascination with water). Infections and intoxicants included rubella, syphilis, paediatric AIDS, and FASD are all instances where a disability can form after birth. In terms of Environmental influences, subtle genetic factors may interweave with socio-economic deprivation to further affect a child's development. Psychosocial disadvantage, poverty, inadequate nutrition, family instability, lack of educational opportunity, or an infant environment that is not stimulating are all referred to as cultural-familial mental retardation.  

Winzer, Margret. "Section 2, Chapter 6." Children with Exceptionalities in Canadian Classrooms. Toronto: Pearson Prentice Hall, 2008. 176, 178, 185, 186. Print.

16 comments:

  1. It is once again very upsetting to see FASD - fetal alcohol spectrum disorder on the list of infections and intoxicants that lead to intellectual disabilities. It is equally disturbing to see that it joins Down syndrome, fragile X syndrome and spina bifida as one of the most common currently known causes of intellectual disorders. The sad fact is that of these conditions, FASD is the most directly preventable. We need to educate expectant mothers and fathers more on this disorder.

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  2. An important movement to change the terminology for what was previously referred to mental retardation to Intellectual Disability has been gaining momentum in the United States. Since the textbook cited above was written, two important events have occurred. On October 5, 2010, President Obama passed and signed Rosa's Law: declaring that the US gov't would phase out the use of the term mental retardation for Intellectual Disability; also that the AAMR (as mentioned above) has changed its name to the American Association on Intellectual and Developmental Disabilities (AAIDD). It has also updated its definition of Intellectual Disability (see their website: www.AAIDD.org)The purpose of all these changes is to create and show respect to those with intellectual disabilities. As Rosa's brother once said "What you call people is how you treat them."

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    1. Thanks for that information, Jennifer - that is really encouraging. It's wonderful to see such positive changes going on. I was saddened to read in the "Weber" text, (pp. 150), that up until about 1950, persons with intellectual disabilities were called feeble-minded, morons, idiots, and imbeciles.(!!)And then a change was made and the term mental retardation was introduced. I guess the latter is somewhat better than former terms used, but I'm sure glad that we're headed in a much more positive direction. And Rosa's brother's quote (which you referenced) makes perfect sense. I am glad to be living in an era where we are using respectful terms to describe persons suffering from intellectual disabilities.

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    2. The terminology that was used to describe those with intellectual disabilities and the way they were placed into homes(for the disabled)and kept out of sight was horrendous. Society has definitely come a long way in accepting that anyone no matter on the severity of their disability are equal human beings and should be treated as such. Don't get me wrong... we still have alot of teaching and educating to do to remove all the misconceptions surrounding disabilities in children and in adults.

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    3. What I don't understand is why said experts can come up with labels for people that carry such a negative stigma to them such as mental retardation, feeble-minded, moron, idiot and imbecile. They clearly were not concerned with how the individual they labelled felt, how people can be so blind to the feelings of others is astonishing. Once given this negative label it is something they carry with them for the rest of their lives, it is no wonder that so many people with disabilities have low self esteem. Thankfully today we as a society are moving toward labels that carry less negativity today.

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  3. I also find it very disappointing that FASD is listed as an instance where a disability can form after birth. It is so easily avoidable, and yet pregnant women continue to drink everyday. I personally find it to be extremely selfish behaviour, and as the Mother, you are completely the one to blame.

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  4. I was fascinated to learn that there are three different types of Down syndrome Trisomy 21, translocation, and mosaicism. I knew that mothers had a greater chance of passing Down syndrome on to her child after the age of 35 but didn't reatlize that in 20-25% of the cases that men could pass it on to their child particularly after the age of 41 regardless of the age of the mother.

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  5. In regards to FASD I truly feel that if a mother knowingly consumes alcohol or drugs for that matter, the should be held accountable and depending upon the circumstances be found criminally negligent. This being said, how do we (1) prove a mother has been drinking and (2) hold--mothers to be accountable when they can potentially abort? (FYI...I am totally prochoice.)

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  6. It is rather remarkable how far society has come for understanding this issues, much as to me it feels like we are still at the starting gate. It's true, not long ago any level of intellectual disability that was visible tended to be aggressively hidden. At least we are past that stage.

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  7. I really liked the line in the Winzer text (p188) that states "..it is important to recognize that intellectual disabiity means slowing down, not stopping." Plus "...their ability to learn and their capacity for putting learning to use is limited but certainly not non-existent." We, as EA's may get to actively participate in the education of children who, although perhaps slower than their normally developing peers, nevertheless will be able to make great gains with our assistance. That is why we are here, to make such a difference in the life of a very special child, and there is nothing more exciting than that!

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  8. I agree with Lisa when she says 'she feels that if mother knowingly consumes alcohol...' that is not always the case though. My mother-in-law works for F&CS and one of the ladies she works with has a child with what doctors call 'one of the worst cases of FASD they have ever seen' She admitted to having 6 drinks ONE night before she even found out she was pregnant. She is now speaks at many FASD conferences and shares her story and struggles. It is said that it is not know exactly when during the pregnancy or how much consumption is needed to cause the effects of FASD and I agree that you should never drink during your pregnancy. I will admit though, that I am guilty for having a few drinks during my 1st pregnancy. It took me over 3 years to conceive and after the first two, I almost gave up hope that I would be blessed with a child and was less careful. A week before I found out, I was on vacation at an all inclusive resort. Yes, I got lucky and have a healthy, bright daughter....unfortunately that is not the case for all.

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    1. I am glad you mentioned this, Karen, as I am sure this very thing has happened with countless women, myself included.I have spoken to many Mom's who unknowingly have had a few too many when they were pregnant. And I get that we cannot understand why a women who knows she is pregnant would consume alcohol, however, I would think in a lot of cases this woman may be an alcoholic - or someone struggling in some way. I know that this does not excuse her actions, but maybe helps us to understand a bit more. After watching several films on FAS now, I have heard such a Mom speaking and I have heard the guilt in her voice. One adoptive Mom of a child with FAS said that she did not judge the biological mother as she has not walked in her shoes or lived her life - kind of amazing coming from the Mom who now is struggling to raise a child with FAS and dealing with the devastating consequences.

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  9. Tanya I love that you pulled that text from the book, as EA's we all have to remember that these children can learn. I truly believe each of us are born with a unique gift, it is helping the child find what their gift is. The video of Temple Grandin was a great example of what a person can do. I watched the movie this week as the video clip shown in class was powerful. (Winzer, Page 172) described the "six-hour retarded child", the child who cannot cope with the method, pace and materials of the regular classroom yet they function adequately in other environments. I really think it will be important for us to learn our student method of learning. If a child standing on his head, helps him to learn math, then I say let him.

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  10. It was interesting to see that the mother's age may not be the only factor to having a child with Down syndrome.The mother's exposure to radiation and certain viruses are now being considered.

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  11. It's sad that with how common some of them are, that there aren't more places which cater to their needs.
    I hope that in the future this will be improved.

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  12. Intellectual disabilities are not disabilities. They are simply a difference in between the way people learn. Society labels people to distinguish between the "social norm" and whatever cable they put to different people. This has been an ongoing disturbance in societyand the media since the beginning of time. Personally the word disability should be evaluated and considered for change. Nobody is disabled, people are simply different

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